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Chemo Room Musings

January 17, 2011

I spent 26 days in the Chemotherapy Room over a period of three and a half months.  In that time, I observed a lot and learned a lot.  Here are some of my musings:

1. A female always accompanied male patients to the chemotherapy room, whether as a daughter, wife, girlfriend or mother.  By contrast, female patients were rarely accompanied by a male friend or loved one.  Women battling cancer surrounded themselves with the females in their lives. 

That observation made me think about stereotypical gender roles with respect to caretaking.  Do women choose to be around other women at a difficult time because many women instinctively know how to care for others?  Or, is it related to how men and women perceive the value of men’s work outside of the home versus women’s work outside of the home? 

Women comprised my support system during my treatment.  These females just did what needed to be done without me asking for it.  Or, they would offer to help in specific ways and be available to me at specific times.  (Some of these women worked outside of the home with traditional hours, while others weren't working or had a more flexible work schedule.) 

The men in my life had to be told how they could help me, and none of the men I’ve written about in this blog ever accompanied me to get IVs.  Several friends and readers commented that they wish I had a man who would be by my side through every part of this experience, but I didn’t.  I think of how the majority of my friends’ significant others deal with care giving, child rearing, and health issues, and I’d much prefer to have someone by my side who knows what needs to be done and just does it.

2. I was the only bald woman in the Chemotherapy Room 24 out of 26 days.  Think about that for a minute.  A woman is going to receive chemotherapy, and that’s typically the only activity that she will be doing that day outside of her home.  She will be in a room with her doctor, nurses and other cancer patients who are going through similar experiences.  As she dresses, she puts on a wig, hat, scarf, or some combination of all three.  What does that say about how she views herself and conventional standards of beauty and femininity?

The wigmaker for the Washington Opera Company kindly offered to help me pick out a wig that was similar to my natural hair color and length.  I love the wig that we chose, but it doesn’t always look good on me.  (Wigs made of human hair need to be washed and styled.  When they aren’t well-maintained, they look rather funky.) 

I had a great head of hair.  Now, I’m bald because of chemotherapy.  Why should I feel less sexy, beautiful or feminine because of that?  Why should I care about making others feel more comfortable about my experience?  Why shouldn’t I make people think about cancer while they’re out shopping at Whole Foods, dining at Hudson, or grabbing a drink at L2?

In the Chemotherapy Room, other female patients would come up to me, saying how brave I was to go bald.  And, at least one person approaches me when I’m out in public, saying how beautiful I look or sharing a story about how cancer has affected them.  Last month, I put my wig in the corner of my closet and decided that’s where it should stay.  I’m the girl, walking around town with a baldhead.  I've realized that feeling comfortable with my baldness and talking about my experience with breast cancer can help to educate others.  That's important to me.  I view my baldness like a badge of honor because I earned it.

3. The experience was tougher than I thought it would be, but I’m stronger than I thought I was.  I knew that chemotherapy wouldn’t be easy, and I knew that it would hit me harder than most given my other medical conditions.  But, I didn’t expect to require 20 additional days of IVs than the average person.  It wasn’t easy, and I wasn’t always the most chipper person to be around.  (My friends, especially Autumn and Tricia, deserve a medal for putting up with me.)  But, I relied on my faith, counted my blessings that this was caught early, and reminded myself that this is part of God’s plan for me.

4. I came away from the Chemotherapy Room with a few epiphanies about my life and the direction that I want it to take.  I’ve realized with a sense of calm and certainty that it’s time.

“Time for what?” you might be wondering.

That, my friends, is for another post.  In the meantime, I’d love to hear your thoughts about stereotypical gender roles when it comes to caretaking and how you’ve reacted to seeing someone who has lost her hair from chemotherapy.  xoxo

Comments (28)

In a recent post on my own blog a freak allergic reaction sent me to the hospital emergency room while I was with my bf on the way to the movies. He did his best to comfort me and be with me on the way there but once my mom showed up he couldn't PASS THE BATON fast enough and get out of there. He spent the rest of the night calling and texting hoping I was okay and the next day checking in on me and showing up with flowers and then an easy going dinner. I try not to hold it against him that he was so panicked and worried that he wasn't a more calming, supportive force. Should he have stayed with me and been stronger and more nurturing or is it okay that it just wasn't easy for him to care for a sick woman and that he passed the baton onto my mother who obviously could? I dont have an answer. I guess it depends on how far this relationship goes. But you need an SO to be with you through sickness and in health so that behavior concerned me. Time will tell I guess. I'm surprised will all your many gentleman callers and friends that none were more helpful and present in terms of treatment (as opposed to favors, rides, company etc). Interesting Post -T.
Posted by Toddy on 02/28/11
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Hi City Girl. I've read your blog for a while now and look forward to your all of your posts. I’m what you blogger call ‘a lurker’.
I applaud you for your honesty and willingness to share with us, your readers. So many times, illnesses like cancer can be so overwhelming that many people choose not to talk about it. I can't imagine how tiring it must be to go through all the appointments, tests, and treatments, and then have concerned friends and family ask how it's going (which is why caringbridge.org is a great site—check it out when you get time—several of our family members have used it and it’s a great way to keep long-distance friends and family updated. I don’t work for the site, just happen to be a fan.)
One thing that comes to mind when thinking about men and women and caretaking is that very often, men are 'fixers'. They tend to be more logical and less emotional (not to say that women aren’t but I’m speaking in generalities, of course. There are always exceptions to every rule. ) and like to be able to offer an actual solution to a problem, which is tough in the case of a serious illness. There are no broken screws to replace or bearings that can be greased to make it go away. Plus, our society tends to frown down upon men showing their emotions and it’s often seen as a weak trait. Having been conditioned this way for much of their lives, I can see how some men might feel awkward and out of place when emotional support is needed.
A perfect example of this is when I had to have a upper GI endoscopy done to try and figure out why I was having esophageal pain. My husband thought I was over reacting and just dropped me off at the outpatient door and told me to call him when I was done (please keep in mind this was about 8 year ago and he’s matured a lot since then). Afterwards, I was still sleeping off the sedatives when he came back, thinking I would have been done already. I did have a polyp which the doctor removed, and thankfully it was benign. Then just last week, he told me that he was sorry and he regretted that he wasn’t there for me. He wished he was able to be more emotionally supportive and vowed not to do that again. I am very happy that he has grown and matured emotionally (sadly some of that growth came from his father battling and succumbing to lymphoma) and am so grateful he is in my life. And I’m glad you have people in your life that you can rely on; to help you when life is…well, being life.
Posted by kdub on 01/21/11
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Thank you so much for sharing your story, kdub! I'm sorry that you have had esphogeal pain issues, but I'm glad that the polyp was benign. You made a lot of great points about how men are told that showing emotions is a sign of weakness and that men like to solve problems.

PS I love caringbridge.org! My friend with two children with disabilities uses that site.
Posted by City Girl on 01/26/11
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You are seriously someone I admire so much. You have come out of this experience so poised.
I struggle every now and then with gender roles, esp after I got married. I understand that as men and women, we are different genetically, but I also believe that a large part has been shifted by society and just absolving men from responsibility. For example, I am the primary breadwinner in our relationship. Yet I am still required to help his mom clean up the dishes while my husband sits on the couch with the other men. Why shouldn't he have to help??? Why is it assumed that I have to help? He doesn't pay my bills, he doesn't support me! Sorry...this is somethng that I obviously get heated up about. As for your experience, I think if you were in a serious relationship, the man would have definitely been with you at chemotherapy sessions--but I'm still not sure that he would have provided the comfort that your friends did. I don't think I have really have that kind of level of female friendships...but my mom is definitely the female i admie.
Posted by Newlyweds on a Budget on 01/18/11
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I would struggle with the same thing, too, Erika! I know that a lot of my girlfriends are in the same boat as you. The ones who are primary breadwinners and have kids still need to do an overwhelming majority of the housework and child rearing.

There were a lot of moms, wives and friends in the Chemo Room. I agree with you that I could have had a guy join me in the Chemo Room, but that he wouldn't have known what to do without me telling him. That's not a good or a bad thing, though. Just more of an observation.

And, thanks for all of your support! xoxo
Posted by City Girl on 01/20/11
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I began my war against cancer over 10 years ago by creating a biotech company, CeMines, that is developing a blood test to detect cancer very early, but my real battle began when I was told 2 years ago that I had prostate cancer. Luckily I had the great fortune of discovering how to beat the cancer myself with very simple but very real secrets that most doctors will not tell you about because they either don’t know about and because they can’t make money telling you about it. I was also able to help my son who was given only 6 months to live by his doctors because he had an aggressive tongue and throat cancer. Today, 16 months later, he is thriving and appears cancer free.

I created www.ChemoQNA.com to help all cancer patients. I sincerely hope you find this a useful and valuable for yourself and for the millions of others who are desperate for help and honesty. I truly believe that if you take the correct steps, you can strengthen your immune system so that it will successfully attack and destroy the cancer in your body. And you will not have the side effects of surgery, chemo and radiation. This requires hard work to make radical changes in your diet and lifestyle, but I believe it is our only choice if we want to win the war against cancer. The statistics on survival of cancer patients who have traditional chemotherapy are not good. Look at http://chemoqna.com/answers-to-frequently-asked-questions/how-effective-is-chemotherapy to see actual results in real unadjusted numbers that do not lie.

Please accept my invitation to visit ChemoQNA.com where you can hopefully learn more to beat your cancer and my genuine wishes for your recovery and good health.

Richard Cavalli
Posted by richardcavalli on 04/18/11
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This post was beautiful, and you are beautiful!
Posted by missblissindc on 01/18/11
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Thank you, Miss Bliss!
Posted by City Girl on 01/20/11
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I have to say, I'm a little shocked to hear that women rarely had a man with them. I would assume that there would be a good showing of husbands, long term partners, fathers, etc... My experience in my own family is that there are particular men that drop anything for the women, and those are the first people I would think of, and aks, to help me. I would expect it!
In regards to you rocking the bald head, I'm not surprised. Being a redhead myself, I know that area for us is something people are going to look at, and have always looked at anyway. Your hair defined you in a way, you're used to being a little different than most. Redheads are badass, and you certainly make a good name for us ;)
Posted by Suburb Girl on 01/18/11
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Thanks for your comment, Suburb Girl! I hadn't thought about the hair piece. You're right, though. I was always getting noticed for my hair so being noticed for my bald head isn't all that different.

That's great that the men in your family would step up in a crisis. I feel like a lot of guys would go if they were asked, but that they wouldn't know what to do when they were there. I also wonder how many guys would be willing to take work off week after week or day after day for chemo.

There were at least 20 other patients in the room every time I was there and men just didn't accompany women. Who knows why?
Posted by City Girl on 01/20/11
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I think that beauty and a woman's hair are intertwined.

Just read these quotes by famous people about women and hair:

Hair style is the final tip-off whether or not a woman really knows herself. ~Hubert de Givenchy, Vogue, July 1985

The hair is the richest ornament of women. ~Martin Luther

There are whole religions in which women never cut their hair. It doesn't surprise me that because of this social standard that women would want to go out, even when it is just in front of other women in the same situation, feeling as "normal" as possible. Sometimes when you are sick it becomes about what you can control, and in this case they can control how they appear. Maybe when everything else seems out of control.
Posted by Katie on 01/17/11
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Great points, Katie! I hadn't thought about trying to keep things normal and controlling something when everything seems out of control. And, I love the quotes! xoxo
Posted by City Girl on 01/20/11
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An older, female co-worker once told me, "Women are always at their best when they're taking care of something." She went on to note that that "something" could be a dog, a plant, a husband, a child or a parent. As I examine the role I play in many relationships in my life, save my parents, I've come to realize I do a lot of "taking care of" in any manner or interpretation. Late last year I found myself feeling very selfish for thinking, "I just want someone to take care of ME!!"

I don't think the gender roles of caretaking or nurturing are something many women will ever escape. But that's where our best and closest female friend come into play. We have to remind ourselves to take a day off, help each other lighten the load a bit when we can...or else we'll just end up burnt out, tired and resentful.
Posted by Alejandra Owens on 01/17/11
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Thanks for commenting, Alejandra! I think your co-worker is right, though! I'm so grateful for my female friends!

And, I hope that when you need it, someone is there to take care of you. I'm not much of a cook, but text me, and I'll bring something over to you or just sit by your side :). xoxo
Posted by City Girl on 01/20/11
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i'm of two minds on the gender dynamic. i don't know if i think that men aren't as good at caretaking as women are; i think it's a radical difference in style. when the man is sick, i tend to immediately go for specific things that will help him - medicine, rest, food, etc. when i'm sick, he just makes himself available wholesale. "do you want something? what can i do to help you?" he's not great at determining what's needed, but he's a rock star at being there when i ask. he'll bend himself backwards to do what i need, without a single complaint. in that regard, he's a lot better than some of my best girlfriends.
Posted by magnolia on 01/17/11
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Loved your comment, Magnolia! I totally agree with you that women seem to know what to do more than men. But, it made me smile that your boyfriend is there for you without being asked. You deserve that! xoxo
Posted by City Girl on 01/20/11
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My brother's girlfriend (she's 32) has been going through breast cancer as well and her hair is just starting to grow back. He was with her for almost every treatment - and when he couldn't be, my Mom was with her (her own family lives very far away, and while they came out for her surgeries, they couldn't be there for the entire course of treatment). They have a very serious relationship though, and live together. At times, she wears a wig; other times, scarves; and sometimes, she would go bald. I think breast cancer and chemotherapy for women is especially difficult because so much of our identity as women is traditionally represented by our breasts and our hair. Whenever I see someone who has lost her hair from chemotherapy, I am always touched by how it forces your focus to her eyes.

Congratulations on being done with chemo! I hope easier days are ahead for you.
Posted by Sassy Marmalade on 01/17/11
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Thanks for your comment, Sassy Marmalade! How is your brother's girlfriend doing? I'm glad that your brother and mom were there for her.

I didn't expect to have a guy with me in the Chemo Room, but I found it odd that 99% of the other female patients didn't either

Great points about the hair issue, too! I've heard a lot of people tell me that they notice my eyes a lot more.
Posted by City Girl on 01/21/11
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I think that you are extremely brave and self-confident and amazing! Going bald is hard because most women identify their hair with being feminine and womanly. Even women with short hair still take the time to make sure they get a good cut. Going bald is an incredible step and I am not sure you quite realize how wonderful this makes you. In regards to gender roles, the only person I want with me when I am sick is my mother. There is nothing like her love to make me feel better.
Posted by Teacher Girl on 01/17/11
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Thanks, Teacher Girl! I'm trying to be brave, even when it's tough. You hit the nail on the head about women and their hair. I can't wait until I need a cut again!

I always want my mom with me, too. There was one mother and daughter in the Chemo Room, and seeing them always made me tear up. The daughter isn't doing well, and I couldn't imagine being the mother in that scenario. xoxo
Posted by City Girl on 01/21/11
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You truly have handled this with grace, confidence, strength and unwavering faith. And I can't commend you enough for your bravery...because it is brave to buck stereotypes and stand strong even if you have lost your hair. I don't know that I'd have the same strength. You are right, why should you put a wig on just to fit in with status quo or to make others more comfortable. You are beautiful! Amazing. As always.
Posted by Jolene on 01/17/11
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Thanks, Jolene! I've tried to be all of those things, even when I didn't feel like. I still don't recognize myself in the mirror, but I know that it sends a message to go out without anything on my head. xoxo
Posted by City Girl on 01/21/11
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I love that you embraced the baldness with courage and confidence. I'd like to think that if I ever had to face the same situation, I'd do the same thing - I'd rather shave it off with conviction than lose it slowly. I think sometimes I'd rock the bald look (honestly, I think my head is probably too funny-shaped for this), but I'd also probably get a bunch of loud Katy Perry/Lady Gaga/Nikki Minaj wigs, or funky hats, or break out my collection of bright scarves. Not because I'd want to hide my baldness or "regain" some femininity, but because I'd want to look like superhero or try on different personalities. In the end, it would probably draw even more attention to the lack of hair, and that's okay! I won't pass judgment on a woman who feels insecure because of her baldness and thus covers it up with a realistic wig, but I think it shows tremendous strength, acceptance, and growth from the experience to go au naturel, just like you've done. I feel a lot of awe and respect for any woman who's had to go through such a trying experience as illness and treatment.
Posted by Cait on 01/17/11
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Thanks for your comment, Cait! I have met a few women who got different wigs for the fun of it and embraced difference personalities during their treatment. I was glad that I shaved it off and donated it. I lost half of my hair in four days, and it was so sad. Once I was bald, I actually felt better.
Posted by City Girl on 01/21/11
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"I think of how the majority of my friends’ significant others deal with care giving, child rearing, and health issues, and I’d much prefer to have someone by my side who knows what needs to be done and just does it." - This whole paragraph really rang true to me. I have another friend who is also going through a really hard time & I think she would probably agree with that statement. When you're going through tough stuff the last thing you want to spend your energy dealing with is trying to show someone how they can help you.
Posted by Skinny Dip on 01/17/11
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Thanks, Skinny Dip! There are definitely those people who think that just showing up is enough. That's just not me. I hope that your friend is okay, and I'm sure that she's thankful to have you in her life. xoxo
Posted by City Girl on 01/21/11
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The gender dynamic doesn't shock me at all. I think I would feel the same way if I was sick...I wish I had a man sometimes (well, a lot of the times), but truly, my best friend is the only person who doesn't make me feel alone.

Congrats on handling this with grace and learning something from it.
Posted by lexa on 01/17/11
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Thanks, Lexa! I've learned so much from this! And, I totally agree with you about the importance of best friends. xoxo
Posted by City Girl on 01/21/11
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